This week has been, and currently is 2017 Baby loss awareness week! MP’s have been discussing it in parliament (massive), parents have been sharing their stories in the media, and charities all over the UK continue to campaign and raise awareness of the effects of baby loss and the need for improved bereavement care in every hospital!
And me? Well I am ashamed to say that I have at present done nothing to acknowledge it or try to raise awareness. I haven’t contacted local media to share my story, I haven’t raised money for the charities that helped us. I haven’t stood and handed out stuff to the public letting them know the reality of baby loss in the UK and the lives of those affected.
I am at present in 2 camps…1 where I want to be campaigning and talking to make a change. And the the second camp where I stand, I stand with feeling of “what’s the point?”.
I want to make a difference for other women faced with a Trisomy 18 diagnosis, I want to make a change and raise awareness of stillbirth and what life is like weeks, months and even years down the line. I want to be the one talking to the world, doing fundraisers and finding sponsorship opportunities to raise much needed funds for the charities that helped us so much … but I’m too tired and honestly with just getting through the events of September – it all feels too much to go to that place so soon!
I have my other kids that bring blessings and joy, but I still face storms, and I wonder…should I keep trying to talk to make a difference only to feel like what is the point? Am I really making a difference? Who even cares?
And then I remember that that mentality isn’t right! How can changes take place if we don’t , in our corner of life stand up and break the silence? Yes it isn’t easy to keep revisiting, and progress can be slow, but does that mean we shouldn’t try? We shouldn’t write about it again?
Because it feels like a huge task, does it mean I shouldn’t talk about it again, and continue to tell people about Trisomy 18 and Stillbirth? And then what life feels like with out your child year after year?
There is always a point to sharing things, even if it makes the difference to just one woman…one family…
I know that for some, they want us to be silent. There are some that want us to put it in the past and leave it there, so they don’t have to hear it all again, see it all again and act interested! Some people want us to “get over it” so that they can too!
It’s exhausting to live with some days. Its easy to feel Im failing at raising awareness and making a difference and its hard to have Baby loss Awareness the month right after the anniversaries. But silence isn’t an option, and silence isn’t me!
We need to break the silence, we need things to change. In this day and age 15 babies a day shouldn’t be dying. In this day and age, women who suffer miscarriage (early or late), Stillbirth or infant loss should feel okay to talk about it if they want to. They should be allowed to talk about the impact of loss in their life and family without judgement on how they choose to feel and behave as a result of that loss.
There are mothers and fathers all around us that for one reason or another have lost their precious son or daughter too soon… they shouldn’t be silent and nor should I. I am one of those mothers, who makes a decision every day to be happy despite my loss. Most days I succeed, but some I don’t!
Baby loss is crap! Its hard to say goodbye to the life that never lived. It was hard to be told our baby would die and they wouldn’t help us! It was then even harder to birth a dead baby and see her beautiful little body and face. It was incredibly hard to bury her, and in the beginning life just feels impossible. And then its hard to let the world know how you feel and what you need. You soon realise how quickly people move on and you are stuck with the pain, and you realise how hard it is to walk through life with more fear, and being more broken and emotional with out them in it.
I guess I want people to be aware of that fact – to know that for some it lives with them forever and is hard. Know that what they need is love, friendship, compassion and empathy. A woman who has lost a baby doesn’t need to be told she can just try again, or that she needs to have more faith, or that she needs to get over it. She doesn’t need silencing or being made to feel awkward when she speaks out. She shouldn’t be told ever that in your opinion she isn’t dealing with her loss in a way you see fit… She doesn’t need limitations on support or time frames of when she should be over it. Please just love them and listen to them…acknowledge their child and be grateful it wasn’t you!
I am hormonal, I don’t want to do a whole lot this year for baby loss awareness (other than this post evidently and the wave of light!). And yes it’s hard to keep remembering in full all I lost and went through with my 3rd pregnancy and birth, but I will always tell anyone who will listen that I had her. A beautiful little girl called Poppy Quinn. I have 4 kids not 3 and that some days I might need a little more love and less judgement.
I lost a baby at full term due to Trisomy 18, and I carry that with me through my journey of life. I love my kids, I count my blessings, I love and have joy… but baby loss is crap and doesn’t just go away because of those things!