At 6am this morning I was adamant that today was Poppy’s birthday! Instead I ended up being a loner at the LGI … I woke at 3.30am with back ache – 4.10 – 6am cramps and contractions 3-5mins lasting 50 secs.. YES THIS IS IT! I called the hospital and off we went (after applying my make up and styling my hair of course haha) WHOOOP! Excitement quickly became the… View Post

Ethan and Megan enjoyed the morning at the Hospice playing in the sandpit, ball pool and making a mess whilst creating “memory boxes”! They are fantastic and the kids really got into it. The idea is that each of them can put in a lock of Poppy’s hair, photos and generally anything to remember her by. It will be their own special box of memories with their sister. I did… View Post

SO many people have said over the last few weeks that fighting for basic care for your sick child is a fight you shouldn’t have to do. But the more we walk this path the more we realise how little the medical sector know and will do for Trisomy 18 babies. Their research is often outdated, their experience with it minimal. Take for example the specialist we saw today, in… View Post