This Monday at our SANDS meeting, one of my friends and I decided it might be nice to do a craft with everyone. With the approach of mothers day this weekend, it just tends to be a more sensitive time for bereaved mothers and we find that crafts not only help us create (hello therapy), but our poor skills in that department also mean we tend to laugh together along… View Post

Yesterday Alice hit 8 months of life on the outside! There is currently no indication of wanting to crawl despite persistence with tummy time, and no teeth either (possibly the arrival of a 1st tooth), but despite these milestones I seriously thought we would be at now, Alice is still becoming increasingly entertaining day by day as she plays more and babbles in an adorable high pitched tone. She is just… View Post

I am the 1…the 1 in 4,000 affected by Edwards syndrome. The 1 told by doctors that I had “pulled the short straw” this time. The 1 that had to fight for care for my unborn child. The 1 in 10,000 to have rare and complex congenital heart defects as a result of said syndrome, And the 1 of the 10 to have a stillbirth that day. Yes I am the… View Post

As I cuddled Alice close this week I began to think of how many days worth of cuddles I have lost over the last 2 and half years with Poppy. Then I moved onto smiles, milestones and life generally with her in it. Nathan and I have spoken a lot about how hard it is some days to wrap our minds around the idea that we should have a 2.5 year… View Post